Pharmaceutical industry trade bodies plan to mobilise patient groups in the debate on clinical trial transparency, according to a leaked memo reported in the Guardian today. The European Federation of Pharmaceutical Industry Associations (EFPIA) and Pharmaceutical Research and Manufacturers of America (PhMRA) strategy starts with “mobilising patient groups to express concern about the risk to public health by non-scientific re-use of data.”
As Tracey Brown says in the Guardian: “We now have the prospect of really significant developments to end the secrecy and make clinical trial reporting a practical reality and, finally, some sound commitments from parts of industry. In this context, the industry associations' strategy to get others to raise further spurious problems is backward. It should embarrass anyone associated with it.” GSK and Roche have distanced themselves from the EFPIA and PhRMA strategy. Every other pharmaceutical company should publicly distance themselves from any association with it now.
The best answer to this kind of strategy is to have thousands more people sign up to AllTrials and for organisations and patient groups across Europe and the US to say they won’t be part it. Please send the link to this page to everyone you know and ask them to sign the petition. Can you post it on Facebook, Twitter, on your blog and website, and put it in a newsletter? Help us by donating to the campaign. https://www.justgiving.com/alltrials
Please donate at https://www.justgiving.com/alltrials